‘My daughter couldn’t stand, climb stairs, hold a mug’
A cough and numbness led to panic, paralysis and a polymyositis diagnosis, a rare…
Living with a rare condition: Cindy’s story and the cost of care
Doctors explained that the baby had to be born first before diverting excess fluid…
From Couch to Critical Care: ‘Our living room is my son’s ICU’
Genetic testing revealed that Jabali had amyloidosis — a rare disease where…


