‘My daughter couldn’t stand, climb stairs, hold a mug’
A cough and numbness led to panic, paralysis and a polymyositis diagnosis, a rare…
“Will I get to see my grandchildren?” A mother’s sickle cell journey and the power of early diagnosis
Sickle cell disease in western Kenya is frequently misdiagnosed as malaria or pneumonia, leading…
She couldn’t feel her legs, her body shut down … now she walks again!
Shannon, 13, was suffering from polymyositis, in which ‘all the muscles are…
Haemophilia: The silent bleeding disorder
Have you ever heard of haemophilia? It is rare. It is serious.…
From Couch to Critical Care: ‘Our living room is my son’s ICU’
Genetic testing revealed that Jabali had amyloidosis — a rare disease where…
Joubert Syndrome: ‘My baby couldn’t lift his head, or sit down’
Roselyn Kanja Odero’s son was diagnosed with this rare neurological disorder that…
One in 100,000: Raising a baby with Joubert Syndrome
Joubert syndrome — a rare genetic condition marked by the tell-tale ‘molar…
Dad’s Hairline, Mum’s Genes: The bald truth about hair loss in men
Are men balding too early? Some studies suggest yes—with stress, processed foods…
